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Statler and Waldorf

Date and Time  - Dec. 18th, 2007, 10:53 am

Current Mood  - awake awake
Current Music  - air purifier

Yesterday morning, [info]purpleglitter and I got up early to pick up the two cutest English budgies. The rusty cage they were in sucked and there were two cats there were being allowed batting at their tail feathers, but the had each other and to their former owner's credit, they had insisted they not be separated in their craigslist ad. They are so obviously bonded, they are snuggled up against each other more often then they are not. We are calling them Statler and Waldorf.

statler and waldorf
+1 )


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Statler and Waldorf home safe and sound, I had to head out to my endocrinology appointment, which went well. It is obvious that my endocrinologist is still not entirely comfortable with me being off psychiatric medication and not in therapy, even though it has been years and I'm doing fine. At least at this point she no longer suggests I go back to either. She did, however, suggest I see my primary care provider. I won't, I don't trust my pcp anymore. However, my endo let slip the name of a primary care doctor popular who is popular with her trannie patients that I'm going to check out switching to.

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After they got done taking my blood, I went over to see Ila. She has been teaching me Telugu script, though the words we've been going over have been Sanskrit. This week I need to practice writing conjunct consonants. I think the script is beautiful and am grateful for the opportunity to attempt to learn it. Ila seems to enjoy showing it to me — which is good, otherwise she probably wouldn't.

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Wait and See

Date and Time  - Jun. 7th, 2007, 11:22 am

Current Mood  - mellow mellow
Current Music  - Blondie - The Tide Is High

I just talked to another nurse who works with my primary care nurse and was told that I should wait until tomorrow to see if it gets worse and confirm that it isn't just some other sort of eye irritation. If it turns out to be conjunctivitis they'll send in a script to Walgreens. I won't actually need an appointment at all.

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Seeing Pink

Date and Time  - Jun. 7th, 2007, 10:34 am

Current Mood  - blank blank
Current Music  - budgies in conference

I believe I have conjunctivitis. [info]purpleglitter noted it last night. This morning I called and made an appointment with my primary care nurse. The soonest appointment I could get is Monday. It's not really that big of a deal, just want it taken care of.

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Medical Progress

Date and Time  - Nov. 19th, 2006, 10:58 am

Current Mood  - awake awake
Current Music  - budgies in conference

I got a letter Friday from my primary care nurse. The letter was dated Tuesday, the day after I saw my endo. The letter informed me that she set me up with an appointment for an MRI (albeit non-gallium based). I guess my endo lit a fire under her ass. My endo is good.

I have an appointment with my primary care nurse tomorrow about getting an referral to a rheumatologist. The letters constitute a slight change is sea, and I am optimistic that my appointment tomorrow will go well.

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Endo Visit

Date and Time  - Nov. 13th, 2006, 11:54 pm

Current Mood  - drained drained
Current Music  - silence

I saw my endocrinologist today. As normal, she renewed my prescription and had my blood drawn. As part of the exam, she asked if I had any leg swelling. I mentioned the oddness behind the backs of my right knee and elbow and that my primary care nurse thought they were lipomas, but that I was doubting that assessment. She took a look at my knee and agreed that there was not a lipoma there. She suggested they might be ganglion cysts, but wasn't so sure because they appeared too lateral in form.

She suggested that I see a rheumatologist for a more specific diagnosis, but that my primary care nurse would have to give me a referral. I told her that I doubted my primary care nurse would, as she doesn't believe anything I say; to which my endocrinologist replied "She'll believe me.". At least I'm getting someone to believe something health related isn't in my head.

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Seek and See

Date and Time  - Oct. 30th, 2006, 06:35 pm

Current Mood  - blank blank
Current Music  - silence

I've been getting out more, which is good. My cycle of vertigo episodes appears to be waning, but I am still not free of this wave. If I keep improving at this rate perhaps in a week I'll stop carrying a staff or cane with me when I go out.

My primary care nurse has yet to produce the referral to the neurologist I wanted. I have given up on her being of much use and have located on my own a doctor of oral pathology who is an expert on Behçet's Disease as well as a sufferer himself. He should be able to rule in or rule out Behçet's as an explanation for my symptoms. Unfortunately, I'll have to pay for the appointment out of pocket, which will definitely be a strain on the coming month's already tight budget.

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Fogwood

Date and Time  - Oct. 17th, 2006, 09:07 am

Current Mood  - melancholy melancholy
Current Music  - silence

I saw my therapist yesterday. I still don't know the point of going, but I still keep going. I have an appointment next Monday. I'm quite ambivalent about it, but I'll probably go anyway. My therapist wants me to keep going, but also wants me to find my own reason to keep going. I am not motivated to search a reason to continue therapy, as I don't really believe that I would find one. Perhaps, if she thinks I should keep going then she should find a reason for me to do so. I feel the whole endeavour is a waste of resources.

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Today, [info]zarthon is taking me to see my primary care nurse. Hopefully she'll give me the referral I want. At the very least, I'll get a flu shot.

After that, [info]purpleglitter and I will be meeting [info]riga_mortia at the Diesel Café. [info]bathofblood may or may not be there.

[info]riga_mortia wants me to go with her and possibly [info]panda_cookie and/or [info]bathofblood to [info]mute_halo's grave tomorrow. I don't think I am physically up to it right now, considering the frequency and severity of the vertigo episodes I've had lately. Even if I was physically able, I think seeing Rob might be something I want to do on my own.

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Episodes and Spells

Date and Time  - Oct. 15th, 2006, 06:36 pm

Current Mood  - blank blank
Current Music  - silence

I haven't really talked about how I've been doing lately. The "episodes" have been on an upswing. I have spent the majority of today immobile. This has not been an uncommon day. I don't like this eating into my life. On days I can, going for my walks is an act of defiance. I want to get back to being productive and perhaps be on the road to getting a job again. I am mentally ready to go back to work, but it is not a realistic option as long as I have these cycles.

However, I am making some progress on figuring the problem out. I was previously unaware that "vertigo" has a specific medical definition. The term is much more specific and I believe better suited than "dizzy" for the spells I've been having. More specifically, I am suffering bouts of central vertigo, as it often is accompanied by blurred vision, loss of fine motor control, sensory distortions, slurred speech, and ataxia. The question still remains as to what is causing it.

I have found two candidate conditions: multiple sclerosis and Behçet's disease. Of course there is a good chance that it is neither, but they do give me a direction to go in when I try to get this issue checked out again. I'm going to make an appointment with my primary care nurse (who I think is a bit of a quack) and see if she can set me up again with a neurologist or someone who can properly look into my symptoms. I'm getting quite tired of this.

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Psychiatric Strip Searches

Date and Time  - Aug. 29th, 2006, 11:26 am

Current Mood  - pissed off pissed off
Current Music  - traffic in the rain

A 50-year-old woman filed a federal lawsuit against Beth Israel Deaconess Medical Center yesterday, saying she was forcibly undressed by five male security guards there last year after she refused a nurse's order to take off her clothes.

The incident, which hospital officials have defended as necessary to make sure the woman was not hiding drugs or weapons, triggered flashbacks to childhood sexual abuse, according to the woman, Cassandra Sampson. She alleged in the suit that her civil rights were violated under the Americans with Disabilities Act, because hospital officials made no effort to protect her from psychological damage.

Sampson said she went to the hospital for treatment of a severe migraine headache, but was moved to a psychiatric unit when she admitted struggling with self-destructive impulses. She said she pleaded to be allowed to keep at least her pants on before the strip search, but the nurse refused.

``Go ahead and rape me; everybody else has," Sampson said she cried out as the guards unbuckled her pants and removed them. ``They left me there with my underwear showing and my johnny up to my chest . . . I was crying, and [the nurse] said, `That's what you get for not listening to me.' "

In a letter to Sampson, hospital officials said they were sorry she had such a terrible experience, but stood by their strict policy of searching psychiatric patients for their own benefit.

...

A spokeswoman at UMass Memorial Medical Center in Worcester said the hospital never asks psychiatric patients to undress on arrival. If they suspect the patient may be dangerous, security guards perform a clothed pat-down search.

Dr. Maggie Bennington-Davis led a successful effort to stop strip searches of psychiatric patients at Salem Hospital in Oregon in 2003. ``We can't be hauling people in here and be doing more harm to them," she said. ``It's very clear that a strip search retraumatizes them."

...

Sampson hadn't intended to go to Beth Israel's emergency room on March 25, 2005, according to the lawsuit. But it was a weekend, and her primary care physician said the ER would be the best place to get help for severe migraine headaches that had persisted for three days.

However, as soon as Sampson told a nurse that she took psychiatric medications and that she had been battling impulses to hurt herself that week, the nurse said she would need a psychiatric evaluation.

Nurse Heather A. Richter then told Sampson that she would need to completely undress, according to the lawsuit.

full article


This is absolutely disgusting. How in the world could Beth Israel's staff think it was in any way appropriate to have 5 male security guards rip off a woman's clothing? This story not only illustrates the dangers of being admitted into psych hospital for victims of sexual assault or abuse, it also illustrates the dangers of telling the wrong person about your feelings and thoughts. Note that Sampson only had thoughts of self harm, not suicide. Her life was NOT at risk. Psych wards are at most about safety nowadays. She did not need the babysitting of a hospital and she definitely did not need to be further traumatized. It was only a panicky nurse that caused her to end up there, this did not need to happen at all.

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Drugs and Basements

Date and Time  - May. 17th, 2006, 04:42 pm

Current Mood  - hungry hungry
Current Music  - fan

I finally found a place that will fill my new prescription for injectable estradiol: the Stop & Shop Pharmacy in Arlington Heights. They are going to have to order it from their distributer, but that is more than anyone else was able to do. I will be able to pick them up tomorrow. Now I need to set up an appointment with the nurse that will instruct me on giving myself shots.

-----

My landlord actually gave me a ride to the Stop & Shop Pharmacy. I was surprised by the offer, but I took him up on it. Afterwards, he asked if I wanted to go with him to his favorite thrift store in Arlington, which is located in the basement of the Fox Library and only runs two days a week. I didn't even know it existed, so I decided to go with him. The prices were very nice and the stuff was not terribly picked through. I was able to pick up a couple nice items without spending much money.

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Shots

Date and Time  - May. 9th, 2006, 08:04 am


I saw my endocrinologist last night. My testosterone levels are a bit too high, however my estrogen levels are high as well. She thinks that another delivery system for the estrogen will help better. She wanted to give me a cream that absorbs through the skin, but my insurance won't cover it. Instead I will be getting injectable estrogen. I'm going to have to learn how to give myself shots. I need to find a pharmacy that carries the prescription, as Walgreens does not. I'll still be talking my estradiol until I meet with a nurse to instruct me on how to give myself the shots.

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Reshuffle

Date and Time  - May. 8th, 2006, 12:16 pm

Current Mood  - blank blank
Current Music  - traffic

Out of three appointments I had scheduled for today, my primary care nurse and my therapist canceled. Now all I have to go to today is my endocrinologist. I guess I have much more time today than I thought.

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Voice Post: Complaints, Neurology, Fears and Hope

Date and Time  - Nov. 1st, 2005, 07:36 pm


VoicePost Help
2167K 10:37
“*sigh* A lot's gone on today, and I shouldn't be making another post today, 'cause I need to ration. So, I probably won't make another phone post until at least Thursday evening, if not Friday.
So. Here's what's been going on.
Well, I found out that the complaint forms are utterly useless, and the quote-unquote "civil rights patients' advocate" person is also bullshit. I quizzed the patients advocate (we had a meeting about patients' rights), and the patients' advocate was very very much giving the pro-hospital line to everyone. And I already became suspicious and I was questioning things and talking about meds and what people should consider, and talking about tardive dyskinesia to people, and she was very upset, saying, you know, like, "You should leave that kind of thing up to a doctor, to tell them" and I was like "But the doctors don't tell them about that kind of side effect", and that "you may get NMF and die", even thought it's a rare side effect, I think people should be informed BEFORE they are forced to take these drugs, that there's so many nasty side effects, like diabetes, and withdrawals from things like Paxil, that are almost as bad as withdrawing from heroin. It's insane, the stuff they don't inform patients. So, I talk to patients about it, and apparently, I'm not supposed to do that.

Well, anyway, me and {name}, the patient advocate, had a little talk, and I found out that... yeah, she keeps telling everybody she's licensed through DMH, so she's impartial. But she's NOT impartial. Yeah, she's got a license through the DMH, but she reports to the hospital. She WORKS for the hospital. Her PAYCHECK comes from the hospital. She meets with the staff, before meeting with us, to get on the same page. She's a member of the staff. She pretends like she's our advocate, but she's not. She's just to here to try to give us someone to grieve to, that it won't really go anywhere.

And furthermore, they have the complaint forms. The other night, I was explained to, that we should fill out the complaint forms, and that something will happen when we fill them out. Well, the fact of the matter is that the complaint forms... if you fill out a complaint form, it gets sent to the nurse manager, Miriam. And, she has fourteen days to either... to process the complaint and figure out what to do about it. Now, especially since she's PART of the complaints, often, this really doesn't work out too well. After fourteen days, she gives her verdict, and you get the complaint form back.

Now, you ARE allowed to appeal this, though. However, the appeal goes to... guess who?! The nurse manager, again! Miriam! The same person the complaint went to in the first place. So, this isn't really an appeal, this is just sending it back to the same person. She has another fourteen days, to make another decision, to decide if her first decision was wrong, and that she actually did something wrong, and then she gives it back to you.
After that, you are allowed another appeal. Now, the other appeal is given to Karen Cook, the "patient advocate", quote-unquote, who works for Cambridge Hospital, and is invested in the Cambridge Hospital system, and SHE decides whether to send it on to DMH. If she doesn't, that's the end of the line. And, at this point, it's been two months anyways, because she's got thirty days to do that.

So, the complaint forms, they give you, that they tell you, "Oh, don't tell us what we're doing is wrong, you must fill out the complaint forms." That's not true. They don't do anything. It's utterly pointless. It's to try to make you think that you're able to complain about what's going on, but you're not.

OK. Well, that's the part that I'm angry about. And I've been informing patients, and they don't like it, about the various side effects of their meds, and several doctors have told me to stop it, and I'll tell them, "Show me where I'm wrong." And they can't, because I'm right. They just don't want the patients to know it.

[Partial transcription ends here. This post continues in the comments.]”

Transcribed by: multiple users


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Voice Post: Gigi

Date and Time  - Oct. 27th, 2005, 03:21 pm


VoicePost Help
1950K 9:28
“I recently saw a movie named Gigi. I think that's the name I might be a little off, but it has Al Pacino in it, and there was a line that Al Pacino said that really stuck with me, and I believe it's very true. You see there was a scene where (it was a mob movie) so there was a scene where him, who was one of the high up people in the mob and a couple of the henchmen were sitting around, and Al Pacino noticed that one of the guys had a gun...

[[ partial transcription - see comments for remainder ]]”

Transcribed by: multiple users


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Emergency Room Visit

Date and Time  - Oct. 20th, 2005, 06:51 am

Current Mood  - drained drained
Current Music  - lake watching champions of the wild

I got back from Cambridge Hospital about an hour ago. I was having one of the worst twitchy dizzy seizure spells I've had yet. I was very reluctant to call for help, because I was pretty certain I wouldn't be believed because of my psych history.

I did call, and a firetruck and ambulance came fairly quickly. They strapped me to a seat and carried me out of the house. They transfered me to a stretcher and loaded me onto the ambulance. [info]merryperseis came with. I was quite out of it for the ride to the hospital.

When I arrived several nurses started asking questions about what was going on and taking down information. They seemed genuinely interested.

The first signs of trouble came when the physician assistant came in. She was rude, but still put on a facade of some form of interest. It was shallow, and they had obviously been into my records at that point.

Next the doctor on call came in. The entire examination consisted of one question: "Do you currently have a psychiatrist following you?". That was it. Period. Fucking asshole. After he left, the physician's assistant came back in and offered me ativan. I have ativan at home. Ativan is not what I need.

At this point, I'm no longer making any bones about the way I feel. I tell her that I'm done with dealing with these problems. She asks what I mean by that and I reply that I'm giving up because I can no longer live like this. She sees this as a healthy response from someone she views as a psych patient and decides to give me my discharge papers and tell me to leave. At this point I can still not reliably walk. She tells me the hospital will not give a taxi voucher and I don't want to call [info]purpleglitter in the middle of the night because she's dealt with enough of my crap over the years.

I tell her that if have to walk or take the bus that I'll be back in less than 30 minutes. She replies to this with "don't threaten me.". Yeah, I can barely stand and I'm being threatening. Get a fucking grip. I'm just stating fact. If I had to walk or take the bus home, I'd end up on the ground and I'd end up being brought back by the ambulance that would be called on me by others.

They didn't want me in the bed any longer, so I sat on the chair as I waited for the hospital manager to appeal the taxi voucher decision. I stayed on the chair a good 15 minutes, but eventually fell off. I was probably lying on the floor of the emergency room for 15 or 20 minutes before a nurse that I had not seen before stopped and helped me back into the bed. I told her that they didn't want me in the bed, but she helped me onto it anyway.

The hospital manager stopped in finally and told me that the decision stands. Offered me a wheelchair trip to the door. I refused the chair and [info]merryperseis called [info]purpleglitter, who was actually up. Heading to the front entrance I ended up on the ground once again. I didn't stay down too long as the episode was at last significantly waning. We got in [info]purpleglitter's dying car and finally went home.

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Missed It By that Much

Date and Time  - Oct. 15th, 2005, 10:27 pm

Current Mood  - blah blah
Current Music  - traffic

I just found a letter from the Cambridge Health Alliance on the kitchen table telling me that my primary care nurse set up the neurology appointment for me. Unfortunately it is the day before Thanksgiving and I'll be in Missouri. I guess I'll have to reschedule the appointment. I need to remember to call Monday. While I'm at it, maybe I can actually set up that long overdue endocrinology appointment.

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Nurse Practitioner Appointment

Date and Time  - Oct. 4th, 2005, 06:36 pm

Current Mood  - pleased pleased
Current Music  - squeaky chirping

I went to see my new primary care nurse practitioner today. The appointment went really well.

First, her assistant took my weight and vitals. My blood pressure was on the low side of normal, as was my temperature. Both still within the normal range and both typical for my vitals. My weight was what surprised me. I had gotten up to 230lbs. But that was over six months ago. I haven't been weighed since then. I weighed in at under 200lbs. 199lbs to be exact. Quite a difference. I guess I've been doing a good job with my eating and exercising. I seem to have quit Project Three Meals over the last few days. I think I'm going to start Attempt 7. 180lbs is my ideal weight. It seems achievable in the near future.

After the weighing, I waited about 15 minutes until the nurse practitioner walked in. She went over all the medical history forms I filled out, and actually paid attention to what I had to say. She was very helpful and non-condescending. I felt extremely comfortable with her.

We discussed my issues with dizziness and the pains and the bumps. She does not think the dizziness and the pains are related. She felt my behind-elbow, and said she could feel what appears to be a lipoma,